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Pediatric researchJournal Article

05 May 2025

The diagnosis and treatment of rare genetic disorders in neonates, infants, and children: the time is now.

No abstract available

COI Statement

Competing interests: The authors declare no competing interests.

References:

  • Berg, J. S. et al. Newborn sequencing in genomic medicine and public health. Pediatrics 139, e20162252 (2017).
  • Williamson, S. L. et al. Rapid exome sequencing: revolutionises the management of acutely unwell neonates. Eur. J. Pediatr. 80, 3587–3591 (2021).
  • NICUSeq Study Group et al. Effect of Whole-genome sequencing on the clinical management of acutely ill infants with suspected genetic disease: A randomized clinical trial. JAMA Pediatr. 175, 1218–1226 (2021).
  • Maron, J. L. et al. Rapid whole-genomic sequencing and a targeted neonatal gene panel in infants with a suspected genetic disorder. JAMA 330, 161–169 (2023).
  • Wojcik, M. H. et al. Genome sequencing for diagnosing rare diseases. N. Engl. J. Med. 390, 1985–1997 (2024).

Article info

Journal issue:

  • Volume: not provided
  • Issue: not provided

Doi:

10.1038/s41390-025-04103-z

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